That Crazy Crippled Chick: Dignity of Loss

That Crazy Crippled Chick: Dignity of Loss: Something that’s talked about a lot in disability circles and special education circles is something called dignity of risk.  Basically,…

My First Shot (Almost)

Today I was scheduled to get my first Spinraza treatment. I’ve been told that I am the first Medicare recipient to get treated. Because of

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Spinraza and Me

For those who don’t know already, I’m disabled by a neuromuscular disease called Spinal Muscular Atrophy type 2. Because certain motor neurons near my spine

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