My First Post Here

When I’m online I tend to hang out at Livejournal, a few polyamory and disability related list serves, or alt.polyamory. I started this blog as a place to to put my longer meanderings. I tend to start these projects with good intentions. In this case I intend to write something fairly regularly here. We will see how that goes. Anyway, if you happen to stumble upon this blog, welcome. Hopefully something will be interesting or entertaining here. Thanks for taking the time out to read my blathering. Feel free to interject your own thoughts or feelings here.

My First Shot (Almost)

Today I was scheduled to get my first Spinraza treatment. I’ve been told that I am the first Medicare recipient to get treated. Because of

Read More »

Spinraza and Me

For those who don’t know already, I’m disabled by a neuromuscular disease called Spinal Muscular Atrophy type 2. Because certain motor neurons near my spine

Read More »