First Livejournal Post

I had truly never intended to put anything in this journal. I’m a bit conflicted about the whole idea. I started this whole thing because I wanted to to read serenejournal’s posts that are restricted to friends. It seemed like the simplest solution. I still don’t expect to be a prolific contributor. I tried a Web log on my homepage years ago and only managed to feel guilty about how little I posted.

I was surprised to find I had more friends here than I thought. Hello to those who added me to their friends list.

Anybody guess where I got my user name from? Don’t be surprised if this is the only post I ever make. waving in your general direction

My First Shot (Almost)

Today I was scheduled to get my first Spinraza treatment. I’ve been told that I am the first Medicare recipient to get treated. Because of

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Spinraza and Me

For those who don’t know already, I’m disabled by a neuromuscular disease called Spinal Muscular Atrophy type 2. Because certain motor neurons near my spine

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