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My First Shot (Almost)
June 17, 2017
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Today I was scheduled to get my first Spinraza treatment. I’ve been told that I am the first Medicare recipient to get treated. Because of
Spinraza and Me
June 15, 2017
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For those who don’t know already, I’m disabled by a neuromuscular disease called Spinal Muscular Atrophy type 2. Because certain motor neurons near my spine
The Center for Disability Rights – Free Our People
March 25, 2013
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The Center for Disability Rights – Free Our People
That Crazy Crippled Chick: Dignity of Loss
March 1, 2013
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That Crazy Crippled Chick: Dignity of Loss: Something that’s talked about a lot in disability circles and special education circles is something called dignity of